Input Needed | Clinical Trial Design | Seeking Patients Diagnosed With Castrate-Sensitive Prostate Cancer

The Center for Information and Study on Clinical Research Participation (CISCRP), is an independent nonprofit organization, dedicated to educating the public about clinical research, and including the patient voice in the clinical research process. As part of their mission, they regularly engage with patients and their caregivers through individual interviews, focus group meetings, global surveys, and workshops to include the patient voice in research endeavors.

At this time, CISCRP is planning a virtual focus group among patients diagnosed with castration-sensitive prostate cancer and their caregivers. We were wondering if your organization might know someone who would be interested in participating or might be willing to share the opportunity to take part with your network. The focus group would consist of 2, 2-hour virtual meetings over Zoom. The meeting would take place in April 2024 (exact date/times to be determined).

Specifically, we are seeking patients who have been diagnosed with castrate-sensitive prostate cancer (ideally a mix of individuals who have experienced androgen deprivation therapy (ADT) as well as those who have not yet had this treatment) who feel comfortable sharing their experiences.

The goal of the focus group is not to recruit patients for a clinical trial, but rather to learn from patients and/or caregivers how to best design a clinical trial for patients diagnosed with this type of prostate cancer. As a thank you for their time, CISCRP will provide an honorarium to those who are eligible and attend the meetings.

If you are interested, please contact:  

Kaitlin Gossart

Research Associate, Research Services

Center for Information & Study on Clinical Research Participation (CISCRP)

Email: kgossart@ciscrp.org

Phone: 617-725-2750 ext. 413