Call the Helpline at (800) 641 - 7274 or email: email@example.com
The PCRI Helpline is unique in the way it interacts with callers seeking help in understanding and dealing with this disease. The “callers” include men with prostate cancer, their families and friends, or physicians. The overwhelming majority of the Helpline interactions, which reaches fifty phone calls, emails or faxes per day, pertain to education for a prostate cancer patient. The Helpline staff person (i.e. “Facilitator”) works with the caller to extract vital medical information, which is essential to assess the nature and extent of the disease so that they can provide information that is both accurate and relevant to the caller’s situation. In such a manner, they “facilitate” the patient’s communication with his physicians to obtain a successful outcome. The Helpline Facilitators provide medical information but do not give medical advice.
We would love help! Please fill out this form and our Helpline staff will get in touch with you shortly.
PCRI Facilitators have been intensely trained about prostate cancer by Dr. Stephen Strum and other PCRI Medical Advisors. They have also spent countless hours reviewing PCRI educational materials. They have access to a Board of Medical Advisors to obtain ideas and information pertinent to an individual situation. The Helpline staff reviews medical articles from The Journal of Urology, Urology, the Journal of Clinical Oncology, The Oncologist and Cancer to stay current with the latest developments in prostate cancer research and treatment. Moreover, educational group emails are sent to PCRI staff to highlight important concepts. Further, each Helpline Facilitator does continual additional research as needed to stay abreast of current developments.
BEFORE YOU CALL:
To assist the staff in answering questions, we suggest that callers be prepared to provide some background information such as:
1. Patient’s Date of Diagnosis
2. PSA at time of Diagnosis
3. Gleason Score at Diagnosis
4. Prior and current Treatments
5. Current PSA
6. Patient’s location (US state or country)
When sending your initial inquiry by email, please do not send attachments.
Jan Manarite - is the wife of a prostate cancer patient. She joined PCRI in October 2001 and works handling Helpline calls, e-mails and speaking publicly. Jan and Dominic’s story of empowerment has caught the attention of local newspapers, magazines, and TV stations. Her passion is to spread education about important PC issues throughout her neighborhood of Lee County. Jan can be reached in Sanibel, Florida at (800) 641 - 7274 or firstname.lastname@example.org. More about Jan.
Jonathan Levy - was diagnosed in 2009 was diagnosed with intermediate risk (Teal), at age 63. He underwent two years of androgen deprivation therapy (hormonal therapy), and radiation treatment. After a few years off treatment, he developed metastatic recurrence in 2014, but continues to do very well with his current regimen. He was surprised to find he had much fewer side effects when restarting androgen deprivation in 2014, than he did in 2009. From the beginning, Jonathan has taken a proactive position regarding his own cancer treatment, researching and evaluating his options in light of the best currently available tests and procedures. Jonathan is a retired Film Editor, and works from his home in southern California. He can be reached at email@example.com
John Mullineaux - was diagnosed with intermediate risk (Teal) prostate cancer in 2004, at age 54. He had surgery in November of that year and his PSA started to increasing rapidly 6 months later. He elected to work with Dr Charles 'Snuffy' Myers, and used a brief round of hormonal therapy as his secondary treatment and his cancer has been well controlled since then. For almost a decade, John was on the Executive Committee of the Lancaster, Pennsylvania Chapter of UsTOO, and became a strong advocate for patient empowerment and shared decision making. John retired from Fenner Plc after 37 years in various financial & general management positions and joined the PCRI Helpline as a Volunteer in November 2014. He can be reached at firstname.lastname@example.org
Robert (Bob) Each - is a prostate cancer veteran who has been with PCRI from its inception, working as a close friend to the PCRI’s original Helpline facilitator, Harry Pinchot. Over the years Bob has also worked with many other organizations such as the Prostate Cancer Foundation, the Westlake Village Prostate Cancer Support Group, the Thousand Oaks Prostate Cancer Support Group, the California Coalition for Prostate Cancer. He has also served as the President of Los Angeles Prostate Cancer Support Group. In 1995, he was diagnosed with advanced metastatic prostate cancer at age 51 with a Gleason score of 9 and a PSA of over 100. He consulted with the PCRI’s Co-Founder Dr. Stephen Strum, who put him on a combination of Lupron, Casodex and Proscar. He also started a clinical trial of an over-the-counter herbal substance called PC-SPES. This combination of therapy dropped his PSA to 0.02. He has remained on continuous hormone therapy to this present time while maintaining a low and stable PSA level of 0.02. When Bob was first diagnosed he was given 6 month to 3 years to live. Now, 20 years later at 71 he continues in excellent health. In his leisure time, he enjoys flying his airplanes and spending time with his lovely family, especially his beautiful grandchildren. He rejoined the PCRI Helpline as a volunteer in October 2014. He can be reached at email@example.com.