It is very important for you to have copies of all of your medical records, both for your own understanding, and for making copies for your medical professionals.

Key Concepts:

  • Make a log with dates for all PSA tests and note in the log any changes/treatments that might impact PSA.
  • Get a copy of the urologist’s notes that discuss the results of the Digital Rectal Exam (DRE).  Be sure to ask your doctor to explain the “Clinical Stage“.
  • Get a copy of the urologist’s Trans Rectal UltraSound (TRUS) report that lists the size of the prostate in grams or cc (roughly equal).  It may also indicate other findings which are part of your biology.
  • Get a copy of the Biopsy Pathology Report.  This should provide the Gleason Score, how many cores were positive, the extent of disease in the cores, and, possibly, other important clinical diagnosis information such as the location of the cancer within the prostate gland.
  • Get copies of the written radiology report for any scans.  Get digital copies of the actual scan, if available.  Future radiologists will want to compare any new scans with old scans.
  • Also include in your medical file copies of any other relevant medical information including other medical conditions, list of medications/supplements, etc.

The PCRI Helpline is available to assist in your understanding of these records.

Page updated 8/1/11